Tuesday, June 23

Day of Rest

Bryce seems to be taking his well earned day of rest today. He's so peaceful that when I changed his diaper and took his temp. he didn't de-sat at all and no alarms went off. That's pretty amazing for a little guy who has made it quite clear that he does not like to be messed with.

We had rounds a little late today but they were quite positive. Thank God that so far he hasn't given us two bad days in a row, I'm not sure I could handle it.

Caleb and I strongly suspect that Bryce's condition has a lot to do with when his favorite nurses decide to have their days off. Ms Lisa was back last night and Bryce had a smooth transition to today. He was good every day Ms Kirby was with him last week, too. Coincidence? I think not. Flirting already? Who's to say.

Doctors orders, he'll be getting his chest tube out today! I am so grateful for this as I know it must be just about the worst thing to wake up to a tube stuck between two of your ribs into your chest. I wish I could take all of the pain and discomfort for him, I wouldn't think twice about it.

Once that tube is out hopefully he can come off some of the pain and anti-anxiety medication. Of course, I love that they are working so hard to keep him comfortable but it would be nice to see him a little more awake too. If he can be comfortable and awake that would be ideal.

Neuro came by to check on him again this morning, they consulted with our doctors here and decided he's still not well enough for his surgery for the hydrocephalus. But maybe sometime later this week, they will be checking in on him daily.

So many people looking after him, thinking of him and praying for him. Friends of family and family of friends are standing up in churches from the valley to the country to the garden state to ask for prayers for baby Bryce.

They say it takes a village to raise a child, how true that is for Bryce.

Despite our hardships yesterday we felt your warmth, your strength and your compassion. Thank you all for continuing to keep us in your thoughts and prayers.

13 comments :

  1. I'm so glad he is having a good day. I know when baby has a good day, mommy and daddy have good days too!

    Imani A.

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  2. I'm so happy to hear some good news. The little guy has found him not one, but two lovely ladies?! He's no fool, he knows who's showing him some love. Hahaha...too cute!

    Poor baby! I'm glad to hear he's getting the chest tube out. It has to be horrible for him and hopefully they won't have to use as many meds anymore.

    Bryce has captured the hearts of so many! We all love that little angel so much. Can't wait to kiss his sweet little face!

    I love you guys!

    Jen

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  3. Glad to hear that he is having a much better day!

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  4. I am a friend of Danae and Danita. Bryce is such a fighter and you two are such strong parents! There are prayers being said for that sweet baby boy from me and my circle of friends at our church!

    Mindy Dyer

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  5. Trina,
    I am so happy that Bryce is having a better day. I get asked about him often. Today the secretary at school asked me about him. She said she would ask her church to pray for him and your family. He has many people praying for him. I can't wait to see him. Tell him his aunt loves him and is looking forward to watching him grow stronger. We hope for many more good days.
    Love, Gene

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  6. Sweet baby! Happy to hear that the doctors are ready to scale down his meds!! Just want you to know that you and Bryce (Caleb, too!) are on my mind all day. Thinking about you all constantly. All my love.

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  7. I am so happy to hear that your sweet baby Bryce had a better day. I'm glad he is resting and things are looking better today. It is so hard to see our little ones in pain and discomfort. What wonderful news that the chest tube is coming out.

    You will all continue to be in my prayers each day.

    Lisa

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  8. He definitely deserves a day of rest, glad things seem to be going more positively today! Y'all are in my prayers!

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  9. I hope you guys were able to rest a little easier too.

    Weslea

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  10. Hey girl. I am so proud of you for the strength that you are displaying. Trust me from our issues with our little one last year, They definitely sense your strength.

    Hang in there and know that you've got lots of love and prayers coming from Michelle and I. We can't wait to meet Bryce.

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  11. A friend from Corral.Net Bryce you got lots of prayers from lots of people. We are all pulling for you and you are one cute little guy. Take Care.... God bless all of you.

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  12. Mommy and Daddy,

    Mommy your right...I do have my favorite nurses, some nurses are little rough. Thank you for handling that for me. I love you so very much. I am going to try to get some more rest and I want you and daddy to do the same. I will continue the fight.

    Love & More Love,

    Your son Bryce

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  13. Bryce, you are absolutely amazing - a little warrior. Katrina & Caleb, there is so much love in your hearts that it has seems to have overflowed into those around you. Stay strong, you are wonderful parents.
    ~ Anonymous but Adoring.

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