Friday night Bryce did an overnight pulse ox test to see how well he saturated his blood with oxygen on the 1/8th of a liter he is currently on as well as on no extra oxygen. It's hard to be sure how he did since it was overnight but every time I looked he seemed to be satting the same regardless of whether or not he was on the oxygen.
Well tomorrow we find out if he did well enough to come off of the oxygen. We sure do hope that he did. It feels like we're on a leash with him all of the time and the concentrator is very loud. We are careful not to complain too much because we realize how blessed we are to have brought such a healthy and happy baby home with us, especially considering his entrance into the world. But we can't help but hope to be rid of the minute oxygen he's on and have a free roaming baby!
Also tomorrow we begin physical therapy. Because Bryce's brain bleeds and need for steroids in the past make him more likely to develop Cerebral Palsy it is best for him to begin physical therapy as soon as possible. And so we shall, tomorrow.
I'm very excited to see if a professional will have any better luck at tummy time than I have had. We'll see.
I'll be sure to let you all know as soon as I do tomorrow so keep a look out and thanks for continuing to check in on us!
Much love!
Tuesday, December 22
Sunday, December 20
Good morning, Mommy
Sent on the Sprint® Now Network from my BlackBerry®
Tuesday, December 8
Six Month Well Visit
Bryce had his six month well visit with the pediatrician yesterday morning and got a clean bill of health. Of course, he's really only at the development level of a two month old since he was four months early, but he had to have his six month shots regardless. Needless to say, that has not been fun. He's been pretty grumpy ever since and needed a couple doses of Tylenol for the immunization induced fever. Otherwise though, Bryce is doing fantastic.
The neurosurgery follow up visit last week went well. The CT scan showed what I felt confident it would, that Bryce's shunt is working well and his little head is healthy as can be right now. We'll have to go back in six months for a fast acquisition MRI and if everything still looks good then we'll switch to the annual check up with them. Bryce will have to follow up with them annually for the rest of his life but as long as we only have to make that trip once a year we'll be happy!
Sleep has been quite the challenge as of late. Bryce still needs extra calories and nutrition for his preemie catch up growth but unfortunately the nutrient and calorie dense formula is harder for him to digest. This means that despite the prescription laxative he's on pooping is not a regular occurrence and is usually quite an ordeal for poor baby Bryce.
On a happier note, Bryce showed me the first sign of a genuine smile on Sunday morning. We were lounging in bed and I was singing to him and he cracked a big smile at his momma. Needless to say, my heart melted and my eyes welled up. The truth is that with everything Bryce has been through and all the things he is so high risk for (Cerebral Palsy, developmental delays) there was never a guarantee that he'd smile. But what mom doesn't wish for this for her children? Every time Bryce does something that other parents often take for granted that their children will do I am encouraged to have more and more hope for Bryce's future.
If he can make it through everything he has already and still find it in him to smile then who knows what else is in his future.
The neurosurgery follow up visit last week went well. The CT scan showed what I felt confident it would, that Bryce's shunt is working well and his little head is healthy as can be right now. We'll have to go back in six months for a fast acquisition MRI and if everything still looks good then we'll switch to the annual check up with them. Bryce will have to follow up with them annually for the rest of his life but as long as we only have to make that trip once a year we'll be happy!
Sleep has been quite the challenge as of late. Bryce still needs extra calories and nutrition for his preemie catch up growth but unfortunately the nutrient and calorie dense formula is harder for him to digest. This means that despite the prescription laxative he's on pooping is not a regular occurrence and is usually quite an ordeal for poor baby Bryce.
On a happier note, Bryce showed me the first sign of a genuine smile on Sunday morning. We were lounging in bed and I was singing to him and he cracked a big smile at his momma. Needless to say, my heart melted and my eyes welled up. The truth is that with everything Bryce has been through and all the things he is so high risk for (Cerebral Palsy, developmental delays) there was never a guarantee that he'd smile. But what mom doesn't wish for this for her children? Every time Bryce does something that other parents often take for granted that their children will do I am encouraged to have more and more hope for Bryce's future.
If he can make it through everything he has already and still find it in him to smile then who knows what else is in his future.
Wednesday, December 2
Back to Work
I've been working as much as possible pretty much since Bryce was born but today I left him home with his Daddy to go to work...all day. I was actually kind of excited. To be something other than a bottle getter and diaper changer.
But then this morning I walked over to say goodbye to Bryce and nearly changed my mind. I knew it was something I had to do sooner or later though. And I reminded myself that moms all over have to do this every single day. I'm so blessed to have the flexibility to be able to work and be a mom, sometimes at the exact same time. So I put on my big girl panties and walked out that door.
It was a long day and despite knowing that Bryce was home with the person who loves him second most in this world (not even his Daddy can love him as much as I do!) I worried incessantly. Caleb and Bryce skyped me at work around lunch time and you think that would make it easier but it only made it harder. Seeing that sweet face reacting to my voice made me miss him all that much more.
Eventually the day had passed and it was time to visit with Bryce's beautiful girlfriend before heading home. Seeing the ever-sweet Adelyn almost made missing my Bryce all day worth it!
Tomorrow is our big neurosurgery follow up visit. And Bryce's first MRI. The radiologist actually had the nerve to call me today to say that I can't feed Bryce for four hours before the appointment BUT should bring him in sleepy or sleeping in order to avoid sedation and to get it done as quickly as possible. Nothing like putting pressure on a mom to starve her baby for a few hours and then try to get him to sleep perfectly still in a tunnel surrounded by strangers. Come on, man.
Wish us luck and we'll let you know how it goes!
But then this morning I walked over to say goodbye to Bryce and nearly changed my mind. I knew it was something I had to do sooner or later though. And I reminded myself that moms all over have to do this every single day. I'm so blessed to have the flexibility to be able to work and be a mom, sometimes at the exact same time. So I put on my big girl panties and walked out that door.
It was a long day and despite knowing that Bryce was home with the person who loves him second most in this world (not even his Daddy can love him as much as I do!) I worried incessantly. Caleb and Bryce skyped me at work around lunch time and you think that would make it easier but it only made it harder. Seeing that sweet face reacting to my voice made me miss him all that much more.
Eventually the day had passed and it was time to visit with Bryce's beautiful girlfriend before heading home. Seeing the ever-sweet Adelyn almost made missing my Bryce all day worth it!
Tomorrow is our big neurosurgery follow up visit. And Bryce's first MRI. The radiologist actually had the nerve to call me today to say that I can't feed Bryce for four hours before the appointment BUT should bring him in sleepy or sleeping in order to avoid sedation and to get it done as quickly as possible. Nothing like putting pressure on a mom to starve her baby for a few hours and then try to get him to sleep perfectly still in a tunnel surrounded by strangers. Come on, man.
Wish us luck and we'll let you know how it goes!
Monday, November 30
Bumbo
Sent on the Sprint® Now Network from my BlackBerry®
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