Showing posts with label CPAP. Show all posts
Showing posts with label CPAP. Show all posts

Friday, July 24

Bryce is Breathing!



Sorry for the delayed report but I wanted to get a good idea of how Bryce was going to do before trying to spread the word. And so far, Bryce is doing amazingly well!

They extubated him at 12:40 p.m. and he had a blood gas test at 2:40 p.m. that confirmed what we thought we could see - Bryce is doing great. His C02 level was a little high but still within the acceptable range. They think that the C02 is just not being blown off as well because he is breathing on his own, hence smaller, shallower inhales and exhales.

Amazingly Bryce didn't even get that fussy when they took the tube out, maybe because he was so ready for that thing to be out of him, and he never really desatted afterward either. He's been taking little breaths all on his own for almost four hours now and is on a little more oxygen (35%) but high-satting most of the time.

We're still waiting for an xray at 4:40 p.m. to check how well his lungs are expanding but anticipating that they must be okay since everything else looks so good.

We are so excited but so scared to leave yet since we know first hand how quickly things can change around here!

The plan all week had been to go home tonight for our second once weekly visit but I simply can't promise that at this point. We'll see how things go.

Thank you all a million times over again for all your thoughts, prayers and comments - they are working wonders!

These pictures are of his new CPAP (continuous positive airway pressure) set up. It includes a nasal canula that blows a constant pressure of air (with a set % of oxygen) into his nasal passageway. This allows Bryce to not have to work too hard to pull in a full breath of air all the way to his lungs from the air around him. It basically lessens the distance he needs to inhale the air. Additionally, it is currently set to give him 20 "puffs" per minute, to stimulate breaths if he forgets. He is currently breathing 63 breaths per minute though, which means he's doing a great job all by himself!

Isn't he adorable?!

Thursday, July 23

Excited Yet Equally Terrified

I just received some very exciting news from our NP today - the plan for tomorrow morning is to extubate Bryce. Yes, that's right - extubate. And not by mistake, not just for a second but as in let baby Bryce try his hand at breathing without a ventilator.

This step to CPAP is commonly the same dance back and forth as from the oscillatory to conventional ventilator. He may go to CPAP tomorrow and be back on the vent tomorrow night or he might last a week and then have a set back. He may go several weeks but then need the vent for another shunt surgery and have to be weaned off it again.

Hence, we are so excited to see baby Bryce without a tube down his throat but equally terrified that something could go wrong or that it won't last long.

More good news to report too. Bryce is finally getting some more mommy milk today. They are using my colostrum from back on 6/12 to "prime" his gut and see how he responds to the feedings. I hope and pray that he doesn't ever have to truly experience NEC as I'm so exhausted by hearing how horrible it is.

Last but not least, Dr. George himself, Bryce's nuerosurgeon, came by to check on him. He said he looks good and hopes this shunt will last several weeks until we have to make a decicion about what he needs - "or whether he needs anything at all." That's about as good of a rosy outlook as you can ever expect to get from a brain surgeon!

All in all, Bryce continues to amaze us with how proud we are of him. It's funny - most parents want Ivy Leaguers, Doctors or Olympians to be proud of. We just want him to breath well on his own, to look up at us and smile, to giggle a little baby belly laugh when we take him home to meet his four legged siblings.